No tests today! Dori got the day off from testing today. She had a pretty rough time last night as her fever spiked to 104 and they had to pack ice packs around her to try and bring it down. She says it took an hour to go down 1°-needless to say she’s had better nights. She has also started coughing and now the thinking is she may have some kind of pneumonia. I guess when I first heard that it was a shock but really we don’t know for sure and so nothing has really changed since there are no absolutes. That frustrates me but Dori seems to be OK when I see her. I know that deep down she is probably scared-we all are but everyone’s hanging in there. It’s real tough on Dori’s Mom, I know she’s going crazy not knowing what’s going on. I’m hoping for some better news soon, that seems to be common theme for these entries lately.
Don’t know much – 2nd day
Not a whole lot to report. Dori is doing OK but her fever still lingers and she still has very little energy. She seems to be doing good when I see her but not good enough to come home. The latest test done yesterday showed nothing-good and bad news as there must be something causing the fever. Dr Kapoor wants to remove her mediport (its kind of like a permanent IV connection in her chest if you don’t know what one is) as they are common sources of infection-even though they have tested for infection there and saw none. So if they can schedule her surgeon they will do that today. Of course Dori is tired of the tests and guesses, etc. It’s frustrating not knowing what is causing the fever and low-energy. Plus this is the first extended hospital stay for her in years. We are hoping for the best but starting to humker down for a long battle. I have called in ground support in the form of my grandma who will be staying with us next week. Even if Dori comes home she will need lots of help. We have had great help so far but there is nothing like having someone on-call 24/7 which is what we will have next week. Better days ahead.
Highs and lows – 3rd day
Today was a big day. At one point I felt that Dori wouldn’t be with us much longer and then when I saw her tonight she looked as good as she has in days and I thought she had turned the corner and would be home soon-and well! So I really don’t know what to think. She has felt pretty good all day but the fever still lingers although it is not real high. All the test they have done have not shown an infection anywhere so the source of the fever remains a mystery. We talked with Dr Kapoor and he was miffed as well. He hopes that the worst is over and that Dori will continue to improve. That is the hope, but as today has shown us..things can change pretty fast. I’m pretty worn out but I was real happy to see Dori up and moving around tonight and talking with Kapoor was helpful too. The best thing was that the kids got to see Mom for about 30 minutes and they were happy about that.